Citation link: http://dx.doi.org/10.25819/ubsi/10319
DC FieldValueLanguage
crisitem.author.orcid0000-0003-2401-3132-
crisitem.author.orcid0000-0002-1991-0587-
crisitem.author.orcid0000-0003-3133-011X-
dc.contributor.authorBaisch, Stefanie-
dc.contributor.authorAbele, Christina-
dc.contributor.authorTheile-Schürholz, Anna-
dc.contributor.authorMüller, Tanja-
dc.contributor.authorFlorack, Janina-
dc.contributor.authorGarmann, Daniel-
dc.contributor.authorKarneboge, Jonas-
dc.contributor.authorLindl, Gregor-
dc.contributor.authorPfeiffer, Nathalie-
dc.contributor.authorPoth, Aoife-
dc.contributor.authorHaberstroh, Julia-
dc.date.accessioned2023-04-28T10:06:00Z-
dc.date.available2023-04-28T10:06:00Z-
dc.date.issued2022de
dc.descriptionFinanziert im Rahmen der DEAL-Verträge durch die Universitätsbibliothek Siegende
dc.description.abstractBackground Everybody has the right to decide whether to receive specific medical treatment or not and to provide their free, prior and informed consent to do so. As dementia progresses, people with Alzheimer’s dementia (PwAD) can lose their capacity to provide informed consent to complex medical treatment. When the capacity to consent is lost, the autonomy of the affected person can only be guaranteed when an interpretable and valid advance directive exists. Advance directives are not yet common in Germany, and their validity is often questionable. Once the dementia diagnosis has been made, it is assumed to be too late to write an advance directive. One approach used to support the completion of advance directives is ‘Respecting Choices’®—an internationally recognised, evidence-based model of Advance Care Planning (ACP), which, until now, has not been evaluated for the target group of PwAD. This study’s aims include (a) to investigate the proportion of valid advance directives in a memory clinic population of persons with suspected AD, (b) to determine the predictors of valid advance directives, and (c) to examine whether the offer of ACP can increase the proportion of valid advance directives in PwAD. Method We intend to recruit at least N = 250 participants from two memory clinics in 50 consecutive weeks. Of these, the first 25 weeks constitute the baseline phase (no offer of ACP), the following 25 weeks constitute the intervention phase (offer of ACP). The existence and validity of an advance directive will be assessed twice (before and after the memory clinic appointment). Moreover, potential predictors of valid advance directives are assessed. Discussion The results of this study will enhance the development of consent procedures for advance directives of PwAD based on the ACP/Respecting Choices (R) approach. Therefore, this project contributes towards increasing the autonomy and inclusion of PwAD and the widespread acceptance of valid advance directives in PwAD.en
dc.identifier.doihttp://dx.doi.org/10.25819/ubsi/10319-
dc.identifier.urihttps://dspace.ub.uni-siegen.de/handle/ubsi/2512-
dc.identifier.urnurn:nbn:de:hbz:467-25128-
dc.language.isoende
dc.sourceBMC medical ethics ; 23, article number 132. - DOI: https://doi.org/10.1186/s12910-022-00854-0de
dc.subject.ddc610 Medizin, Gesundheitde
dc.subject.otherDementiaen
dc.subject.otherAlzheimer’s diseaseen
dc.subject.otherMemory clinicen
dc.subject.otherAdvance directiveen
dc.subject.otherPatient empowermenten
dc.subject.otherAdvance care planningen
dc.subject.otherAutonomyen
dc.subject.otherSupported decision makingen
dc.subject.swbDemenzde
dc.subject.swbAlzheimerkrankheitde
dc.subject.swbPatientenverfügungde
dc.subject.swbEinwilligungsfähigkeitde
dc.subject.swbVersorgungsplanungde
dc.subject.swbEntscheidungsunterstützungde
dc.titleProject DECIDE, part 1: increasing the amount of valid advance directives in people with Alzheimer’s disease by offering advance care planning - a prospective double-arm intervention studyen
dc.typeArticlede
item.fulltextWith Fulltext-
ubsi.publication.affiliationFakultät V - Lebenswissenschaftliche Fakultätde
ubsi.source.doi10.1186/s12910-022-00854--
ubsi.source.issn1472-6939-
ubsi.source.issued2022de
ubsi.source.issuenumber23de
ubsi.source.pages12de
ubsi.source.placeLondonde
ubsi.source.publisherBioMed Centralde
ubsi.source.titleBMC medical ethicsde
ubsi.subject.ghbsVYCde
ubsi.subject.ghbsVUEde
ubsi.subject.ghbsVUREde
ubsi.subject.ghbsQSAde
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